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PRODID:-//Microsoft Corporation//Outlook 11.0 MIMEDIR//EN
VERSION:2.0
CALSCALE:GREGORIAN
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TZID:Europe/Brussels
UID:20260527T212622-418067438@ehtel.eu
DTSTART:20260622T120000Z
DTEND:20260622T133000Z
DTSTAMP:20260527T212622Z
SUMMARY:From Rights to Reality: EHDS and Patient Needs in Integrated Long-Term Care
DESCRIPTION: The European Health Data Space (EHDS) establishes new rights for EU citizens to access, download and share their electronic health data.\n\nFor people living with complex, chronic or age-related conditions who depend on Integrated Long-Term Care (I-LTC), these rights represent a potentially transformative shift. Yet data fragmentation across health, social and informal care settings remain the norm — and legislation alone does not guarantee integration in practice.\n\n&nbsp;This webinar asks&nbsp;three fundamental questions: What do patients and informal carers need from digital data sharing in I-LTC? How&nbsp;can&nbsp;citizen-mediated data sharing be guaranteed?&nbsp;Are current policies and tools answering&nbsp;that guarantee?\nDrawing on the experiences of the&nbsp;<a href="activities/eu-funded-projects/laurel.html" target="_blank" rel="noopener">LAUREL</a>&nbsp;and <a href="activities/eu-funded-projects/xshare.html" target="_blank" rel="noopener">xShare</a> projects — two EU-funded initiatives advancing citizen-controlled health data and care integration — this webinar will explore how the EHDS and citizen-controlled data tools can:\n\nPlace patient and carer needs at the centre of I-LTC digital transformation\nContribute to care integration in practice\nLeverage concrete regional and EU-level experiences to inform policy on care integration possibilities and benefits\nIdentify what is still missing for citizens, carers and care systems\n\n\n
TRANSP:OPAQUE
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