Collaborating for Digital Health and Care in Europe
Community Update
[Greeting]
The European Health Data Space (EHDS) Regulation is set to redefine digital health in Europe. To help the community navigate this major shift, EHTEL launches the first edition of its new Digest series. This edition is dedicated to the EHDS implementation.
This special EHDS Digest brings together key news, videos, presentations, and reports from EHTEL’s work on EHDS implementation over the past two years.
It is designed as an ideal preparation for the upcoming EHTEL Thought Leader Symposium "The EHDS is coming. Let's get people and data ready", ensuring participants arrive with a shared understanding of the policy background, core concepts, and latest developments on:
☑️ EHR Systems & Infrastructure
☑️ EHDS & Citizens' Rights
☑️ The Journey Towards the EHDS
☑️ Secondary Use of Data under the EHDS
☑️ EHDS & AI
Looking ahead:
Stay tuned: In January, EHTEL will launch three Working Papers on the EHDS, that will be at the forefront of the discussions taking place at the EHTEL Symposium. These forward-looking papers are the result of six months of collaboration among EHTEL members and experts, enriched through online workshops, consultations, and validation rounds.
Your feedback matters: By getting your views on the Working Papers during the Symposium we aim stimulate advocacy activities on the part of the EHTEL community and put your recommendations on the table of EHDS policy makers.
⚜️ Some insights in the Digest are entirely public, while others were developed exclusively for EHTEL members and are fully available only via the EHTEL Members Workspace. Gaining access to these in-depth, member-only materials is just one of the many strong reasons to join EHTEL and be part of a leading network supporting digital health implementers in Europe.
Read the EHDS Digest, get aligned, and get ready for what’s next!
This Task Force meeting reviewed an early draft of a working paper on the EHDS regulation of electronic health record (EHR) systems. It examined – from the perspective of implementers – some blind spots and pain points.
During the third meeting of the EHTEL EHDS Implementers' Task Force panellists offered answers to the question: What does the EHDS definition of electronic health record (EHR) systems mean for implementers? The meeting offered special insights into what is needed by implementers in terms of EHR systems.
This 2024 Symposium session helps understand the European Health Data Space and the ways it can be implemented from the perspectives of three stakeholder types - industry, researchers, and public health organisations. This session was held with the support of xShare, a large-scale project with a focus on electronic health record use in the EHDS.
EHTEL’s European Health Data Space (EHDS) implementers' task force was launched online on 5 November 2024. An overview of the future and application of the EHDS was given. A panel of five stakeholders offered their opinions on current main challenges: Which priority challenges to focus on? How to function as an eco-system?
Sorsix successfully completed testing at the IHE-Europe Connectathon Weekwhich took place in June in Vienna, Austria. The firm demonstrated full support for the new xShare Yellow Button standard under the European Health Data Space (EHDS), which earned it considerable success. Its award positions Sorsix’s flagship product Pinga®as a future-proof solution for EU-wide digital health interoperability.
The xShare Yellow Button will allow Europeans to share our health data safely and with trust in the European Electronic Health Records Exchange Format (EHRxF). The button itself provides a means for people all over Europe to get involved in the safe data-sharing of health data.
Since 2023, citizens in Catalonia can have access to a summary of their clinical data by downloading the data from La Meva Salut and through the Blue Button. The TIC Salut Social Foundation will provide Catalonian citizens with the Blue Button solution and ensure its proper functioning.
On 18 February 2025 EHTEL members gathered for the second meeting of the EHTEL European Health Data Space (EHDS) Implementers' Task Force. This meeting provided an overview of the task force; its process; its outcomes; and five questions that the task force is seeking to answer.
Yet one more bold step has been taken to move the EHDS implementation towards success. A new alliance – called ESHIA – has been set up as a platform for collaboration to support the EHDS. EHTEL's Secretary-General is ESHIA’s inaugural President – a way of strengthening EHTEL’s commitment to support EHDS implementers. More information soon on work towards the EHDS and health standards interoperability.
Implementers are keen to work on activities that are taking place in a variety of countries on ways to advance the implementation of the European Health Data Space (EHDS). Learn what dates may affect your work up until 2030.
This webinar was hosted in the context of the xShare project and the EHTEL “Imagining 2029” work programme. It gathered together leading experts to explore how to better connect the primary use of health data for patient care with the secondary use of the data for purposes of public health, research, and policy.
The International Data Spaces Association (IDSA) is an active promoter and facilitator of Data Spaces in Europe in different strategic sectors. IDSA has an original perspective on data space creation which emphasises a strong connection to business cases and industry.
A joint workshop organised by EHTEL and Xt-EHR project explored how electronic health record systems/ EHR systems users can best benefit from artificial intelligence (AI)-supported monitoring and decision support systems. Discussions captured the real requirements for meaningful interactions between EHR systems and AI solutions.
At the EHTEL 2024 Symposium, Petra Wilson broke down the EHDS into three development phases, highlighting its legal foundations. She described the EHDS as the key to unlocking health data through data altruism. She also highlighted the role AI will play in its implementation.
