Approved trusted interoperability and patient access to data have been on the eHealth agenda for more than a decade. Today, many people acknowledge that progress in these two domains - the two critical bolts - has not met expectations. Making concrete progress on them is, however, the key to delivering new, much expected, clinical and societal value. The proposed European Health Data Space (EHDS) regulation provides a solid answer to this situation. Even if there is now a distinct consensus on the EHDS underpinning principles, much remains to be done to translate them into practice. In this session, you will get answers from several European large-scale projects. Speakers' insights cover: what concrete progress means, what topics remain controversial, what are the proposed solutions, and which actors will be involved.
🕐 Session Programme
► Session introduction
► Power to the People. Are we really ready for this?
Zoltan Lantos, ESZFK – eHealth Service and Development Centre, Hungary
Europe’s Digital Decade policy programme has set the target for 2030 for 100% of citizens having access to medical records online. Pilot projects and technical developments that pave the way towards this target are underway and are making promising progress. One can be reasonably certain that the technical capabilities will therefore be available by the end of this decade. However, a people-centred approach requires much more than this. This presentation will demonstrate the initial steps that three key EU-funded projects – PATHeD, POTENTIAL and Xt-EHR – will make the upcoming period.
► Patient centred access to data
Claus Duedal Pedersen, Sundhed.dk, Denmark
Empowering the patients starts with an easy, secure and user-friendly access to all health care data. The Danish experiences show how national standards pave the way for system integration across the health care system and enable the use of data for both citizens and health care professionals.
► Moderated debate with panellists
Marc Lange, EHTEL General Secretary
