On 26-27 January 2027, we move beyond compliance and look at how to make the EHDS work for people. Join us in Brussels!
With this Symposium, EHTEL invites organisations which are shaping EHDS-related strategies and roadmaps to examine whether the FAIR and Fluid vision of data can offer a useful framework for looking beyond compliance to truly workable, usable, and meaningful data that will improve Europeans lives, systems, and industry.
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Scope and content
Europe is putting in place the legal and technical foundations of the EHDS. Going “beyond EHDS compliance” means opening up an important strategic stakeholder dialogue on important parallel steps related to health data. Currently, a substantial gap exists between the use of structured and unstructured data, health data, and many other useful forms of data. Addressing this gap may require more than simply standards and exchange infrastructure. This is where the application of the FAIR qualities of data – Findable, Accessible, Interoperable, and Reusable – enters the scene to influence information produced and consumed in healthcare delivery workflows. As a result, fluidity of data will be achieved when information moves across system and organisational boundaries and is then incorporated into care.
Overall, the Symposium will introduce the concept of a distributed functional architecture – an EHR-centred Health Data Intelligence layer that could contribute to producing and consuming FAIR and Fluid data throughout the EHDS data journey. Achieving all this would be a shared responsibility that would cover all sorts of stakeholders, including vendors, healthcare organisations, and European and national public authorities. Several strategic propositions for action could be considered. Initial discussions should test the concepts, clarify which problems require action across organisational boundaries, map relevant existing initiatives, and identify subjects that warrant future collaborative work.
Ultimately, the Symposium’s aim will be to innovate and develop value with, and in, the European Health Data Space (EHDS).
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The all-important topic of going beyond data compliance, which underpins the Symposium, will – it is hoped – ultimately become a real plan of action going beyond 2027. |
Agenda and topics
The agenda includes:
- 26 January 2027: An EHTEL members get together, including a matchmaking session.
- 26 January 2027: A New Year reception and a networking dinner.
- 27 January 2027: 2027 Thought Leader EHTEL Symposium.
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Symposium sessions
Sessions will include:
☑️ Roadmaps for a “Only Once” Strategy and Data Fluidity
The "Only Once Strategy" vision is that data produced in care delivery workflows can be consumed, with minimal manual effort, by other workflows. Examples include care delivery support, public health, research, statistics, policymaking, and AI development. To achieve this vision, healthcare systems need to create the conditions for data fluidity. In an EHDS context, primary and secondary use of health data need to be connected.
“Only Once” principles include these five needs:
- Capture information as part of the care workflow (as close as possible to its source and using findable, accessible, interoperable, and reusable (FAIR) data qualities – using common identifiers, terminologies, units, and provenance)
- Preserve one identifiable authoritative source
- Reuse existing information instead of requesting or re-entering it unnecessarily
- Correct errors at source and propagate corrections
- Apply purpose-specific access, minimisation, and transformation.
☑️ EHDS and Prevention: From Data to “What If?”
The EHDS is being built to make health data accessible, interoperable, and reusable. But what happens when we go one step further – and use that data not only to understand what has happened, but to explore what could happen in the future?
Prevention is perhaps one of the most compelling opportunities for this transition. Yet the journey from EHDS data to useful prevention is not automatic. It requires several factors, including appropriate governance, AI, and modelling capabilities. Above all, evidence is needed that these approaches improve health outcomes and fit into real-world care.
This session covers the shift from interoperable health data to personalised prevention, simulation, and virtual twins. It will explore what lies beyond the EHDS:
- How can Europe turn connected health and contextual data into prevention and decision support?
- How do emerging virtual digital twin ecosystems fit into the picture?
- Ultimately, what do clinicians, innovators and national authorities need to make this transition happen?
More sessions will be announced soon!
What’s in it for you?
During these two days of dynamic activities, EHTEL is planning for you to work together on:
- Important experiences and challenges associated with FAIR and Fluid Data, to create opportunities for innovative healthcare interventions as well as personalised healthcare approaches.
- Two major EHDS Implementing Acts related to the primary use of data.
- Some of the forthcoming topics in Horizon Europe calls for proposals.
The time spent together will enable you to share your own key experiences, insights, and learnings with like-minded people and many EHTEL members.
Last but not least, you will get to invite along invitees of your own choice!
Join us
Get the important dates of 26 and 27 January 2027 into your diary and join us for the 2027 Thought Leader EHTEL Symposium under the exciting topic of “From Data Compliance to Data That Works”. Register here!