
xShare has also studied major public health data flows and mapped them to the six EHDS primary use domains (prescriptions, dispensations, patient summaries, lab reports, imaging, and discharge summaries). This work includes “IPS+R” (International Patient Summary for Research), which outlines data needed for clinical, public health, and population-level use cases. From these, xShare has prioritised three public health areas: healthcare-associated infections, antimicrobial resistance, and cancer.
xShare has been in close contact with the organisations that play a central role in collecting data in these three priority areas and has invited them to join this plugathon to discuss the new opportunities offered and the challenges ahead. Together with clinicians and medical information officers, we will also consider the impact on data collection processes, with the perspective of reaching near real-time monitoring, at least for key variables.
In addition, the EEHRxF may support new and innovative workflows for public and population health, with the active participation of patients, such as in the case of Long COVID. Together with public health analysts, SDOs, and clinicians, we will explore how the EEHRxF can support active patient discovery and contribute to an interactive and dynamic knowledge consolidation process.
This workshop therefore brings together representatives from across the entire value chain - including patients - to discuss innovative and sometimes disruptive data workflows that hold the promise of significant new benefits for both patients and society.
Speakers
- Thierry Klein, CHR Haute Senne Hospital - Reflecting on best strategies to connect hospital EHR in near real time to secondary use of data.
- Iztok Štotl, Medical Chamber of Slovenia (MCS) - Reflecting on the need for standardisation for CDs and NCDs.
- Bram Lestrade, European Society of Clinical Microbiology and Infectious Diseases (ESCMID) - study group dedicated to advancing AI, data standardization and interoperability in infectious disease (ESGAID) -Highlighting the challenges of interoperability in microbiology data.
- (online) Luis Alves de Sousa, European Centre for Disease Prevention and Control (ECDC) -The EU Public Health authority perspective on standardisation of infection-related data
- Giorgio Cangioli, HL7- Reflecting on wide profiling including primary and secondary use of data for specific health domain.
- Licínio Kustra Mano, SNOMED International - Reflecting on global terminology mapping and links between terminologies such as SNOMED-CT and data models.
- Ankur Krishnan, University of Heidelberg - Reflecting on the use of OMOP in microbiology.