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The current healthcare data ecosystem remains fragmented, with limited alignment between clinical, research, and public health data standards. The European xShare project addresses these issues by linking EHDS1 (primary use) and EHDS2 (secondary use). It documents "only once" practices in four EU Member States - approaches that aim to reuse clinical data for secondary purposes. While fully integrated infrastructures show potential, challenges remain around semantic quality, provider buy-in, and resistance from data providers especially if multiple parallel data collection systems remain operational.
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The workshop will focus on both existing data workflow - with a focus on infectious diseases - and innovative and prospective use case - taking Long Covid as an example.

xShare has also studied major public health data flows and mapped them to the six EHDS primary use domains (prescriptions, dispensations, patient summaries, lab reports, imaging, and discharge summaries). This work includes “IPS+R” (International Patient Summary for Research), which outlines data needed for clinical, public health, and population-level use cases. From these, xShare has prioritised three public health areas: healthcare-associated infections, antimicrobial resistance, and cancer.

xShare has been in close contact with the organisations that play a central role in collecting data in these three priority areas and has invited them to join this plugathon to discuss the new opportunities offered and the challenges ahead. Together with clinicians and medical information officers, we will also consider the impact on data collection processes, with the perspective of reaching near-real-time monitoring, at least for key variables.

In addition, the EEHRxF may support new and innovative workflows for public and population health, with the active participation of patients, such as in the case of Long COVID. Together with public health analysts, SDOs, and clinicians, we will explore how the EEHRxF can support active patient discovery and contribute to an interactive and dynamic knowledge consolidation process.

This workshop therefore brings together representatives from across the entire value chain - including patients - to discuss innovative and sometimes disruptive data workflows that hold the promise of significant new benefits for both patients and society.

The workshop is open free of charge to any person interested upon prior registration.
 
Both physical (Brussels) and remote participation is possible.
 
More information here.
 

Practical information

Date : 24/03/2026 Time (CET): 9:00 > 12:30 Register
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2026-03-24 9:00 - 2026-03-24 12:30

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